Milton Keynes girl, 6, cheered by classmates on first 100m walk
Bea’s mum calls it a “massive achievement,” after two heart operations due to a rare disorder. …
A six-year-old girl with an extremely rare genetic disorder has walked 100m (328ft), surrounded by supportive classmates.
Bea was born with neonatal Marfan syndrome, which severely affects her muscles, has had two major heart operations and needs a ventilator 24 hours a day.
Her school near Milton Keynes held a fancy dress day to raise money for a new wheelchair and walking frame to help her cope with the condition, which is believed to affect fewer than 100 people worldwide.
Her mother Jennifer Pykett said: “Two weeks ago, I think the furthest she’d walked was about 10 metres. It’s a wonder that she’s doing what she’s doing. We’re exceptionally proud of her.”
About The Author
