Caernarfon family’s despair over care for son with rare condition

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Hari’s mother can go 36 hours without proper sleep – as his family wait for a full care package. …

Rocio Cifuentes, the children’s commissioner for Wales, said: “For children and young people throughout Wales who have complex needs, there are often difficulties in accessing the help and support they need. We want care to be much easier to access for children, and we want it to fit around them and their needs.

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